Thursday, August 09, 2012

Bday pressie :)

So yesterday I received this gorgeous iPhone S4 as a be-earlied bday pressie and i'm lovin it!! :) I know it's so close to the release of iPhone 5 but I'm not going to whine abt it. This is great! Of course one of the few things I explored with are the twitter and appstore pf course. And because I use google docs few hours daily, it makes sense to also check that out as well. And now to testing if I can blog better, which as you can see here is allllll well ;) hoping to be updating here more often now *wink* til yhe

Friday, July 20, 2012

Fighting Henoch Schonlein Purpura Disease

There were many times I wish to turn to this blog and document my thoughts. Most times only thoughts rushes by. And heart wearies with emotions. There were just no words to describe. Only feelings and mostly pain. So I guess there are things where only the heart knows. And not the mind.

Sometimes I wonder if Mia will ever read my posts here. If I will ever allow her to. And will she understand, forgive and accepts that I am only human. I wish she doesn't see me as a superhero. Although I try to be strong for her. I just hope it doesn't come across as something she wants to or have to turn out to be.

I may be strong. Actually I do think I am. I don't think many people who had gone through my life would turn out to be like me. It was a hell of a journey. And it is not common at all. But that doesn't mean that I don't let myself go sometimes. There are many moments when I'd cry myself senseless at the world. My world. Once again, I am only human.

Less than a month ago Mia was diagnosed with Henoch Schonlein Purpura disease. It started when her left ankle was swollen without reason. We thought she must've sprained it since she is in the jumping phase. We had not witnessed a fall. One Sunday (June 17th) afternoon she said her leg hurts. The same night before getting ready for bed, she said she cannot walk. Her ankle was swollen. Rushed to Pantai Hosp and did an x-ray. The doctor said there were no traces of fracture so they'll treat it as a sprain. They arm us with pain-killers and bandaged her ankle. She was also referred to an ortho for a follow up. The following day the swelling subsided and she can walk again. Occasionally she'd complain it hurts. She also develop skin rash which I had thought from the bandages but strangely it was on both lower legs. I had assumed she had scratched them so bad that the other leg had also suffered the rash. On Tuesday she had a fever. On Thursday (June 21st) we went for the ortho appointment in the morning. And she was clear to go to school in the afternoon. On Friday (June 22nd) afternoon when I had collected her from school, her right knee was swollen, it was warm to touch. Her teacher said it happened after she woke up from her nap time. She wasn't doing anything physical.

Once again we rushed her to the hospital. They had admitted her the same night. She had x-rays done to ensure there were no bone fractures. A different ortho was on call but he was doing surgery at the time. So he had requested her to be admitted and monitor the swelling. They were concerned if the swelling gets bigger, it might mean she has an infection and will need surgery to drain it as soon possible. At around 1am the ortho came to check on her and said the swelling doesn't look too bad, it might be another injury and treat it as a sprain. Again. They wanted to monitor her further but by next day the swelling went down and she was already jumping about. She also told the nurses she wants to go home. The nurses checked with the ortho and he cleared us to be discharged. No pediatrician was involved. This was on Saturday.

Her rashes came and go. Someday worse than others. We applied lotion. The following Friday (June 29th) she had flu and cough. This time we decided to take her to her pediatrician instead, Dr Altaf. We had intended to get flu and cough medicine. However, once we were in the doctor's office, I poured out everything and all details from the beginning when she had a swollen ankle til present. He immediately does a routine check-up and checked her skin. That's when he said, "I think she might have something called Henoch Schonlein disease". I know my heart just stopped for a moment. I didn't realize she was having a  type of disease. He scribbled the name on a piece of paper. Told us to monitor her urine over the weekend, if her urine turned so dark and there are blood stained urine or in her poo, get her admitted immediately under a pediatrician and they will treat her kidneys. It meant the virus had effected her kidneys. No one know how some gets the disease while other don't but for Mia's case it is highly due to her low blood count (since birth) that had made her more susceptible to infections/viruses. We have to monitor her urine for about a month to ensure she is all cleared from the disease. It is common for the disease to re-cur, but we do not want it to re-cur too often or her kidney wouldn't be able to take it and will be damaged. So the school and us will have to monitor any sudden swellings of her joints.

Last Wednesday Mia had started Beaconhouse. She is adjusting pretty well and had her first school outing to Beryl's Chocolate Factory. More days now I feel she deserves to laugh out loud til our jaws hurt and our tummies aches. Because she deserves more of those days now than ever.

I will try my best to be strong for you, my little one. Although there are days when I too crumble and fall. But  for those little time when I become vulnerable, it was to build courage and made me stronger on most days for you.

Thursday, June 14, 2012

For you. And everything in between.


Saw the world turning in my sheets 
and once again I cannot sleep.
Walk out the door and up the street; 
look at the stars beneath my feet.
Remember rights that I did wrong, 
so here I go.

Hello, hello. 
There is no place I cannot go.
My mind is muddy but my heart is heavy. 
Does it show?
I lose the track that loses me, 
so here I go.

And so I sent some men to fight, 
and one came back at dead of night.
Said he'd seen my enemy. 
Said he looked just like me,
So I set out to cut myself and here I go.

I'm not calling for a second chance,
I'm screaming at the top of my voice.
Give me reason but don't give me choice.
'Cause I'll just make the same mistake again.

And maybe someday we will meet, 
and maybe talk and not just speak.

Don't buy the promises 'cause, 
there are no promises I keep.
And my reflection troubles me, so here I go.


Saw the world turning in my sheets 
and once again I cannot sleep.
Walk out the door and up the street;
 look at the stars.
Look at the stars fall down.
And wonder where did I go wrong.

Friday, April 27, 2012

Dear baby

Above all, I want you to learn that love trumps any other emotions be it anger, hate, frustrations, expectations.

Love, Mommy

Monday, April 16, 2012

Be Kind

Be kind to your children
Be kind to them when they're young
Because you don't only just have children and be responsible for them
You are also their nurturer and emotional supporter
For that will take you far with them
Far beyond lifetime
So be kind to them, be kind to your little ones
Teach them with love, gentle and kindness
Not with pain, anger nor hate
For that will reflect their future
Little by little, as little it takes

Thursday, April 12, 2012

Potty Success

Mia had been introduced to potty when we bought one and she was around 2.5 years old but we didn't do anything with it til one day she decided to try it on. I think her friends or teachers or she had been observing her older friends using them so she had been talking about it since. I wasn't sure if she's ready but she was on holidays and I took a week off work so I thought it'd be a perfect time to start.

Yes, I heard people saying to only start when they're ready - not when YOU (parent) wants them to - to avoid frustrations and accidents which will aggravate frustrations and stress. But I was aware she was talking about potty and how big girls pee in them and showed lots of interest on flushing the toilet and toilet papers. So armed with potty books and videos on YouTube, I set to teach her how to use the potty. Needless to say, I failed big time. She had accidents through out the day and well into the third day, I announced to myself that she's just not ready. So we decided to wait it out for few months.

Come New Year I tried again. This time I sat her up on her potty every night after dinner. Sometimes she goes, most times not. After 5 days I decided to call it quits as well.

One day end of March, just one night, while the potty was sitting quietly in her room for a long time, she was nappyless and sat on it. Excitedly she took the inner potty out to me in the living room and announced, "LOOK MOMMY! I SHEE SHEE POTTY!" I peered into the bowl but it was empty so I said so. Then she went back inside her room, and just peed into it. With the same gesture and announcement the first time, she showed it to me and of course I made a huge deal out of it. We took it into the toilet, washed it out and clean her up. The next morning, she did it again before we left for school! We told the school and they'd look her into it and encourage her as well. However, she did had few accidents the few days after and I was about to give up but her teacher said, "once we start, we just go through with it". So I didn't stop.

Today is the 4th day she's been nappy-less even on outings and during naptime. At first, I couldn't trust her without a nappy when we go out - even on the way back from school. And then I realized chances of her peeing in a nappy is far more than when she's not wearing one. So now she tells us when she needs to go. On Monday after school her teachers did not put on a nappy for her so we went to even have dinner (mamak) before heading home. At the mamak, she did look a little jumpy and restless so I asked her if she wants to go. She nodded but once we were in the toilet (it was an old type where you have to squat) she'd refuse to go and told me she did not want to. This happened twice. On our way home, she told us she needs to go and I had told her to just hold on a little. By the time we reached home I was so sure she had wet her undies. Turned out she had been holding it out for so long! Once on her potty, she peed awayy!!

So that's how I figured she's ready and her muscles in her bladder is strong enough to hold urine. Oh but I found out she can nap without a nappy a few days earlier than Monday. It was an accident - I forgot to put a nappy on her and she wasn't feeling well so she had a nap. Woke up dry :)

Some time this week we'll get more panties for her. I'm not sure when she wouldn't need one during bedtime but I don't think it'll be anytime soon. I put her on a nappy before bed last night and this morning it was full! Also, she hasn't mastered pooping in her potty yet. So she still have accidents. But I'm pretty confident she'll get that one pretty soon :)

xx

Monday, April 09, 2012

Updates

So for the past 4 months, a lot has happened. A LOT!

I now have a new colleague at work, May. She's not practicing psychological counselling yet as she is still undergoing her Masters, but hopefully she will be starting soon in September as practicum and under my supervision. I'll also be sieving through her cases and she'll only practice cases that are under my approval to begin with. Hopefully she'll gain more confidence and learns fast (with no doubt) so she'll be able to undertake psychological counselling fully soon. At the moment I've been handing her most of career counselling and she's doing an absolutely brilliant job at it. My big boss has been transferred to Vietnam, they've opened another outlet there and he's managing it. So we're left with my immediate boss whom in my opinion is demotivating, not interested and quite distracted by other things in her life. She's also managing way too many departments for someone who is new and her capability can be questioned. All the time. Unfortunately it is the culture of this institution to put senior employees as priority when promoting, and train them instead of selecting through capability and handwork. Which I truly do not agree nor appreciate neither.

So that's work. At the moment I am working just to fulfill my KPI and nothing else. Which is truly sad. I can no longer say I have sufficient or adequate job satisfaction.

Jan 3rd we were poured with a devastating news. I have secondary infertility, which meant the possibility of another child are slim. Having discussed this with darling hubby, we both came to terms and accepting this. Though that doesn't mean we'll stop trying. Mia is a dream of ours and if by any chance I get pregnant again, that child will be our miracle. It will only strengthen and extend our love to our children more. I am also under hormonal treatment requiring a specialist appointment every month.

We celebrated Papa's birthday at a Japanese buffet dinner joint at Legend Hotel. He enjoyed his salmon very much we were so pleased. In February, Mama, Papa, Adik, Boy and Mak (aunty) went off for Umrah. Our Valentines this year was spent at the specialist hospital for another check up and news. Thankfully he said we shall only return after 2 months. The pills are working but very slowly.

March was when my big boss mentioned his departure. Some time end of March we encountered that unfortunate health issues episode on the previous entry. Mia also had her first outing this month and enjoyed it tremendously. Some time mid March was when she had went into her room, found her potty, took it out and showed it to me, "Look Mommy, Mia shee-shee (pee) potty!" "No, there's nothing in there", she went back into the room, peed, and came out again with the inner pot, "Look Mommy, shee shee potty!" and this time there truly was pee. And a lot! Since then she had few accidents but mostly peed in the potty. We're still working out on poops and have not dared going out of the house without a nappy. Only recently since her recovery from Herpangitis that she doesn't need a nappy for nap time. Her school is also working on it with us which I'm very pleased. Perhaps on March 20th I had inquired more information on Desmond and Penny's (May's bro and SIL) migration to Aust. The following day, armed with a contact person Penny gave, I managed to inquire further.

So April is close to Mia's 3rd birthday. She'll be celebrating it at Kidsports BVII (her favourite place) with friends and families. On 18th her school is having another outing to KL's Bird and Butterfly Park. I've also suggested bringing a cake and some balloons so she can celebrate her birthday with her school friends at the park. Last Saturday, we managed to meet Mr Thena (apparently is Yvonne's husband), a solicitor, and went for an assessment. He suggested we use darling husband as a primary person as his chance is higher (being an engineering graduate and working experience). So today we are ready to send in our first stage of application. Our decision, is about to change our destiny and about to grant my ultimate dream. I have never in my life, had a dream this big about to come true. It is so big and so close that I sometimes find myself awake in the middle of the night, thinking it over - most times, ruffles my emotions to thinking; what if it isn't as great as I'd think it would be. Such a dream. But if it happens, and when it happens, I shoot a note of gratitude and know deep in my heart that I make my life the way I want it to be. However it be.

And that's all there is to updates. Made a small 5 inch belated birthday cake for May. Red Velvet. We'll also be throwing Lara a farewell party as well as celebrating a be-earlied birthday for her. So we'll combine both later. Lara will be off joining her family's business (properties and estates) and this week will be her last week with us. All the best, Lara!

As for us, cross fingers things will work out the way we had hoped and dream it will be.

Tuesday, April 03, 2012

Mia's First Hospitalization

Before I delve into why I've not written and updated as often as I should, let me just mark the day Mia had been admitted to PMC for a couple of nights for Herpangitis!!

For the whole week of last week both Daddy and I had been off from work to look after the little one. This was how it started, 2 Fridays ago, we rushed her to the Emergency unit because she was coughing and through her phlegm there were fine traces of blood. I freaked out, yelled for Daddy to come have a look and he literally scooped her up and off we go to the hospital. Thank goodness the doc said a blood vessel or a tear might have occurred when she had coughed or sneezed too hard (she was starting to have a bit of cough then). She also sounds a bit "tight" in her chest and had a round of nebulizer. And another round for after dinner. So armed with few meds, off we went to work and sent her to school.

The week passed by and her cough has improved very slightly and for some reason, her appetite had also decreased. Now my little miss eat-a-lot is known for her good appetite so usually if she's having decreased appetite, it usually tells me she's unwell. Come Saturday we took her for her second movie experience - Lorax. Now unlike her first time at the movies - Puss in Boots, where she had sat through the entire movie - this time she had requested to go out of the cinema halfway through. Which was swell since Daddy has started snoring lightly, we don't want to embarrass ourselves when he starts to reaaalllyy snore! She was looking a bit under the weather so to cheer her up, we took her to the Barbie doll shop and she had one fingernail done (free!), picked a toddler-sized umbrella and we went home.

Sunday was one of the weekends I'd have to go to work to help out with some things. Seeing Daddy's down with a slight flu, and Mia looks unwell, I called work to say I won't be able to come. That afternoon I was glad to have made the decision. Darling hubby was down with flu and Mia had a temperature of 38.5C so we went to the Emergency again. This time the doc checked her tonsil and discovered that both her tonsils are red and swollen. It is tonsillitis. She had had tonsillitis before when she was very young. 10 months, maybe. It was horrid. So we went home with another batch of meds.

Monday, I had accompanied both my parents to Gleneagles to deciding what dialysis treatment for Papa. The doc was pleased I turned up at the appointment since both parents are not ready and unable to decide. I had made the decision and Papa had to be admitted straight away. His potassium level is too high and kidneys are also in bad shape. They need to insert a catheter into his abdomen immediately. All these time Mia was at home with Daddy but they came to visit later in the afternoon.

She didn't look so well so we didn't stay long. Tuesday, she still didn't look good. So both of us stayed home from work. Visited Papa in the afternoon when he was about to undergo his surgery. Mia has stopped eating, and speaking altogether.

Wednesday I had to turn up for work for a couple hours then we decided to visit the Emergency again. Previously I had spotted the ulcer on the side of her tongue. So I asked the doc to check it. We had to force her mouth open and that's when the doc saw multiple ulcers and swellings in her mouth. She had refused wearing socks or shoes, claiming "pain". I then recalled the few times she had shown me her hands and scratched them but there were no skin rash. Doc suspects it has something to do with Hands Foot and Mouth Disease but because she doesn't look dehydrated, they're no worried and did not admit her. Later that afternoon, her school manager called. A boy in her class had been admitted to a hospital yesterday for Herpangitis. His symptoms are similar of Mia's. I panicked. I called the unit, spoke to a male, left my number for the doc to call me back. He didn't. This day was also the day we found out my MIL is in ICU. She went into a coma and she's all the way in KB.

Thursday, Daddy decides to go back to KB and checks on his mother. Mia woke up with a bit of bleeding on her top lip. Immediately I carried her and we went to my panel doctor. The GP listened and said to me, "Why did you go to the Emergency? They are young junior doctors, you should have gone straight to the paeds!" I had wanted to smack myself! Paed! Then I remembered, it was a Sunday and her paeds was not open. So since we had started with the Emergency unit, we kept on going back there. I asked for a referral letter to one in PMC and he had gladly made an appointment for us. We met with a very gentle and soft spoken Dr Atikah Ng.

And because she heard my worry and built up stress, she admitted Mia straight away. At this point she was still not eating nor talking. Only sips of water or milk. Daddy couldn't leave his daughter, so he decided not to return. His sister updates him every now and then. Dinner time, she said "I'm hungry" so took a couple spoonfuls of rice porridge and few gulps of soy milk. That night, my cousin and brother came to visit. She was so excited upon seeing them. That night, she had trouble sleeping. Woke up a couple of times and whimpered during her sleep. Restless first night at the hospital. Thank goodness her paed decided she doesn't need a drip line else she'd be even more uncomfortable.

The next day she was recovering so well. She was eating all her meals slowly and painfully. And because she was eating, she doesn't need a drip line. She's let out a small cry when food goes into her mouth, then she'd try eating again. It was such an experience to watch. By Saturday morning MIL had woken up, and Mia can be discharged. Papa was discharged on Friday.

So yeah.
That week was hell for us. But we pulled through and everyone's okay now. Only I now have a terrible cough! Agh! Off to the docs for nebulizer and cough meds! :)